Day 185 – 29th April 2018

It is with a heavy heart that we let you know that our beautiful baby boy Thomas was too tired to fight anymore.

He passed away peacefully in our arms this morning with the care of his team at Alder Hey.

He fought for 6 months and 2 days and he had finally had enough.

Thomas, you are the bravest, strongest, most determined baby boy I know. You will be with us forever in our hearts and in our memories. We love you more than we can ever express and we are so, so proud of how far you came, with all the odds stacked against you.

Sleep tight little man. You made our lives a better place. 

*** UPDATE  3rd May ***
Since sharing the news Tom passed away we have had an awful lot of support and messages from Tom’s supporters and friends near and far. We have also unexpectedly been asked if there is somewhere to donate towards Tom’s final journey – his funeral (associated costs, as services for children are provided free of charge) and so those wishing to can donate at the following place:

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