Sorry for thr the lack of updates on Thomas over the last month. Not much has been happening in terms of lreogress forwards and we’ve been stuck pretty much waiting. So, what has been happeneing…:
An interesting few weeks. Since the last update on the 28th Jan, there have been a few ups and downs and he’s pretty much in the same place ventilation wise.
We were told that Thomas’ main immediate issues were his nutrition (he was failing to thrive), his continual infection cycle and his airways issue.
So, his feeding method was changed to continual NJ needs (into his jejunum) with high calorie formula and topups of EBM as extra NG. This seems to have been the answer to his weight gain...Read More